Monday, November 29, 2010

Happy Thanksgiving to everyone

I sure hope that everyone had a wonderful stress free Thanksgiving holiday. I know that my husband and I enjoyed eachothers company. We played some board games and watched some movies at home.
It snowed here a little over a week ago and since then the weather has been very cold and snowing on and off. I understand from the forecasters (they are only right part of the time) this is suppost to be a bad winter. All I can say is I have only been here for 4 winters and this one has been the worst one being so far. Tonight we are forecasted to get 4-6 inches and ice in the morning hours. The rest of the week is much of the same.
Today was my day to make my pearsauce. I can no longer eat applesauce and love it. So I buy large bags of pears and make my own. I am sure that it is better for me because I don't have all the extra crap in it. But with all the damn breaks I have to take it is a 4 hour long process. But so well worth it, this time I didn't buy as many pears because of the cost so it is not going to last long at all. I have had to buy so many things that are not processed that it is night and day to the way I use to shop just a short year ago.
My pain hasn't let up but I have to push through the day. I don't go to work and not sure how I could make it through the day if I did. I haven't heard from SSD I applied 6 months ago. I understand they have upto a year before they have to answer the first request. I hope that they approve me. I need insurance and money, I guess if they don't it will be on state aid. Not looking forward to that, but going to have to think about it. My secondary insurance runs out in another month. I would advice any and everyone always get aflac or something like it. You never know what is instore for you when you wake up in the morning. I have always had the problems with my bladder but never knew what was wrong or that it would take over my whole life. But if I wouldn't of taken out the insurance my husband and I wouldn't of been able to stay off of state aid this long.
I am so tired and hurting so much lately and don't want to bother anyone with my problems, I just wonder does anyone really get what I am going through? Or the bigger question does anyone really care?
I will end this for now, but I pray for all of you. I don't want anyone to feel like me.

Monday, November 15, 2010

Clouds

Today is so sad outside, it isn't to cold out but you would think it is just by looking out the window. Well I have forced myself to get up shower and try to look like a normal wife. I do this everyday in hopes that my husband will think that he is still married to somewhat of a normal lady. I would hate for him to really know that I have to drag myself through the day, most of the time crying inside. I don't want anyone I love to know that I hurt as bad as I do. It is hard work to put on a good front, not sure how long I can keep this up but I can try.
On the good side of this I did get some of the laundry done, if you don't do some of it every few days I don't think I could get it done. We had a very bland supper, well my part of it I always put extra seasonings on my husbands. He isn't the one that is have problems just me.
I am trying to figure out what would be good things for Thanksgiving, we will be here together and that is fine. But since I can't really travel I feel a need to give him a wonderful meal. If anyone has any wonderful ideas please let me know. The normal Greenbean Casserole is out because of the crap that is in it. I know he loves it so I need to figure out something. Turkey is fine because it is pretty bland. I just want him to have a wonderful day, this isn't his fault. I know that it isn't mine but I am forced to live this life. I don't ever want to loose him because of this awful disease.
I love all of you, and pray that everyone is having a month to be thankful for.♥

Thursday, November 11, 2010

Interstim One week Post Op.

First let me start by saying I hope that this doesn't become a bunch of symbols as soon as I post it. I have talked to some people and they told me how to fix the problem I hope that it works.

I have had the interstim surgery done. I had it done on November 2nd 2010, it was easier than the trial surgery. But the down side is that this isn't working as well as the trial. I went to the doctor today and he told me it can take up to a year till the best results. I have to say that I have some good results, I get to sleep for 2 hours at a time instead of 1 hour. That is enough to be happy about.

I have been having a hard time with pain but thankful to be a patient at the pain clinic. I know that not all the people with IC get to be involved in that. I just happened upon the right doctor.

I have lost so much with this disease and sure feel like I will never get any of it back. The truth is I probably won't. I will never be pain free, never be able to eat the yummy foods of the past, and will never get back the job and friends that I had. But I have to be positive and think that GOD has done this for a reason, the reason that I haven't found yet. But I will try to be strong till then, this is hard to do, but I am trying.

I will make more efforts to post updates here. I wish that IC was cured!♥