Yesterday I did nothing more than my wonderful days of going from the reclined position to sit in the bathroom. The pain was there and made sure that I didn't forget about it. My night was pretty good I got up every hour, but from 5am till 6:45 I sleep. That made me very happy.
Today I got up with a purpose, I was going to see my doctor and discuss my options. I also start the DMSO cocktail today. The 50 mile car ride was unbearable, I did take a pain killer there is only so much those can take care of. I got to see my doctor and he took me off Prosed and put me on some other medicine plus gave me two samples to try. I seem to go get meds and they don't work, so he gave me 2 different samples that I will take for 2 weeks each before having to spend money. He told me that I don't have very many more options. I can try the electric stimulation of the bladder if the DMSO treatments don't do much. The other thing will be to go to Seattle for a second opinion. We have already tried what he knows. He then put me off work till July. I hope the DMSO treatments work so I can get back to work before that. But I probably won't have a job if it takes that long.
As far as the DMSO treatment it sure wasn't pain free. My husband says that I burned his eyes and throat all the way back home, from the awful garlic smell. He says it is like I soaked in a tub of garlic. I feel sorry for him that he has to drive me. I just hope the smell goes away before bedtime.
For everyone who reads my blog please keep me in your thoughts I really hope this works, I want so badly to be back out in the world.
Subscribe to:
Post Comments (Atom)
I don't understand why your Doctor isn’t suggesting a pain management Doctor for you. I was at Death's door due to my pain taking over my life. My Urologist was starting to feel uncomfortable about the high dosages of pain medication he was prescribing so he sent me to a pain clinic. The first one was awful; I felt they didn't get what IC really is. I went to another one (recommended by the ICA) and the Doctor saved my life. She taught me to forget about the amount of pain medication I was taking. I was so worried I would get addicted; she told me that I would not get addicted, I would become dependent and there is a big difference. She was right, although I take a large amount of pain medication, it saved my life, and it gave me back some quality of life. I tried DSMO, I had the Inter-stim put in, and noting worked for me. Today (7 years later), I am still taking pain meds, I have come down a little in dose, but my IC is under control. I use to end up in the hospital several times a year, I haven't been there in 2 years. Also I have no stress, I work from home and I truly believe taking stress out of my life was the other life savior. Don't give up, go to a pain specialist, find the Doctor that fits you and treats your needs.
ReplyDelete